An idea that is overdue

This is going on in Houston, but should be spreading across pediatric cancer treatment sites throughout the country soon. The program makes it easier for information about one's childhood cancer treatments to be accessed by his or her future physicians.

Personally, I find it incredibly intimidating to even think about looking for a primary care physician because of my history. I have a little card that explains my treatments, but it doesn't really explain the possible long-term effects of those treatments. Add in the fact that I am chronically lazy when it comes to scheduling doctors' appointments, and you get someone who should be seeing a doctor very regularly, but sees one only invariably. I wonder if something like this might make it easier for those patients like me.

Good news

This is most definitely good news. The president signed the Caroline Pryce Walker Conquer Childhood Cancer Act into law today. The law calls for $150 million to be spent over five years for such initiatives as expanded pediatric cancer research and a national childhood cancer database.

PTSD in adult survivors

Fortunately, I do not believe I have ever suffered from PTSD related to my treatment of leukemia 17 years ago. Unfortunately, nearly 25 percent of survivors do.

More from Wisconsin

From The Reporter in Fond du Lac.

Wisconsin teen lobbies for research dollars

Of course, we should never forget that treatments, which can cause late effects, also make it so we can experience late effects. Which is pretty important.

Jacob Froehlich of Wisconsin is lobbying his state legislators to fund more childhood cancer research because therapies developed in the last seven years saved his life.

A fighter

Alex Dobay just graduated from high school. In the five years it took him to complete high school, he fought off non-Hodgkins lymphoma twice, but has now been diagnosed with acute myloid leukemia that could have been caused by his earlier chemotherapy treatments. He now faces a second bone-marrow transplant.

The Cleveland Plain Dealer has the story.

Childhood cancer legislation

This legislation, which comes from Ohio's own Rep. Deborah Pryce, would provide $150 million over five years for expanded pediatric cancer research. The bill is named for her daughter, who died at the age of nine from neuroblastoma.

More late effects

Hey... I had this drug.

Cost of Living

This came from your's truly back in November, along with a first-person sidebar.

The first-person piece is my most concise writing on what it is like to be a long-term survivor of childhood cancer.

Childhood cancer rates by region

This isn't late-effects related, but it is childhood cancer related. And you can't have late-effects without surviving childhood cancer.

Apparently childhood cancer strikes at a higher rate in the Northeast than anywhere else in the country. The Midwest doesn't lag far behind, though.

Here's the actual study, courtesy of Pediatrics: Official Journal of the American Academy of Pediatrics.

Learning to Live Again

This is a nice piece from the Ottawa Sun, which frames late-effects around the severe effects suffered by a girl who had a brain tumor.